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Put your two cents inhere.

 Be well,

Sponge

Be well,

Sponge

  I have been here to help  Sponge through a lot of his Phantoms. As well as he has helped me through mine. I have to say it is a cleansing and a huge relief. Thank you for helping me through the good times and bad Sponge. Know that I will always be here for you as well.

  Just remember… the Phantoms can only take over your life if you let them. Take control and dont let your phantoms over rule your life.

Take care,

LadyHawk

   We had a great friend and family member come ”Home” for Christmas. It was great to have him home for Christmas. We waited until he came home to cut down our ”Charlie Brown” Christmas tree. Then he helped us decorate it.  Just his company was a pure blessing. Thank you Crash (John Miller) for being such a wonderful friend and person. We love you and appreciate your friendship.   

  Sponge and I had a wonderful Christmas together. We didn’t have alot of money and could not get our children alot of gifts. But Ally and Alex were both happy with the gift that we did get them. It wasn’t about the gift it was the thought we put into it. Not only did we specially pick the gifts out for our kids, we also hand made cookies for them as a stocking stuffer. We enjoyed taking the time to do these things for them. It was all about them because that is the way it should be. You should always put your children first, it is more rewarding then you can ever imagine. We love our kids and that is just the way it should be. Kids should always be first in your life. Then everything else just works itself out. Children are God’s wonderful gift to this world and I could not ask for more.

  Not only that I was really looking forward to going to see my family for Christmas. I wasn’t able to see them last year because they did not allow my children to come with. My children will always come first and I would never be without them. Expecially not on Christmas day and no other time. Well we were actually invited as a family this year. I didnt think that I was going to be able to go home for Christmas because of my car being broke down. Well my mother and soon to be sister-in-law drove down to pick us up and bring us home so that we could come home for Christmas. They dont know how much that meant to me. I cried when I thought that I would not be able to come home for Christmas. They gave me a wonderful Christmas present. Thank you to a great sister-in-law and a wonderful mother and father. Love you guys…. It was good to see you on Christmas day…

  Now we are back home and happier then ever. Thank you God for the best Christmas ever…

LadyHawk

 Tonight the kids are at their Mom’s and Jamie and I plan on wrapping the kids gifts and sipping hot chocolate.

Tomorrow the kids open their presents then we head to Louisville for the day to visit family.  It has been 6 months since we left.  I do not miss much up there, but some of our friends I miss dearly.

Merry Christmas to all. 

Sponge, Jamie, Ally & Alex.

(by the way, Ally got a 51, 52, and 53 on her PSAT test.)

 This is the only strong drug for Crohn’s that I can afford with government health care.  While there are better drugs available, I simply cannot afford them with Medicare. (Rest assured, I will be spewing about that later.) But beggars cannot really be choosers, right?

 The side effects from this medicine can be awful and at times fatal, so I had to endure a battery of tests (including a rather painful liver biopsy) before being allowed to start the drug.

 I now have to go for blood tests every week to make sure that the methotrexate is not destroying my liver, but that is not that big of a deal.

What is much more troubling is the way I feel the day after the injection.  The first week I was just a bit tired the next day.  Last week it started out the same, but got worse as the day progressed.  I felt as if I had been hit by a truck 20 times in a row.  Every part of my body hurt and the fatigue was as bad as it has ever been.  I laid down on the couch and did not get back up until Ally got home from school.  Finding the energy to go get a drink or to the toilet was as futile as finding a totally honest politician.

Today I drove Ally to school, but as of 9 am I feel that deep fatigue starting to creep back in.  I keep being told by Ally & Jamie to take it easy.  Today I really do not have a choice, I do not have much energy to put out.  What I do have I will save for family time tonight.

I do not like feeling like this, but hopefully it will close the fistula and help me get off of prednisone.

Swords almost always have two edges, do they not?

 Be well,

Sponge

 We missed you all as well!

 Be well,

 Sponge

   We had the kids stay with us in a hotel it was great to be with them. Just the circumstances for it wasn’t very pleasant. Its wonderful to have Ally with us every day though. Look forward to moving in the new home and being with both our children. We both miss Alex very much.

We got news today that our well is done. We have to get our electric hooked up so they can make sure everything is working alright. Then we just have to wait for state to recheck everything and hopefully we will be moved in by the second week in July. Its been a long process but once we get in the house and everything it will be well worth it. Can’t wait to get moved in and settled. Then once we get our internet hooked back up and everything we can start blogging daily again.

Take care,

Lady Hawk

    Im really upset and hurt because my family is trying to bring me in the middle of my parents affairs… I have nothing to do with what is going on in my parents life right  now. Why they are putting me in the middle is beyond me. If I could I would change the situation but I can not. I cant handle stress well at all and Im trying not to let it all bother me. But its hard not to let it bother you, when you have people who are suppose to care about you doing stupid stuff and trying to make you look like a bad person. Im not a bad person… I think Im a good person and I would never do anything to harm anyone. I tend to put other people ahead of my own feelings and myself. Expecially people that I love. Oh well what ya going to do though? Sponge is doing all he can to keep me safe and comforted. He is doing a wonderful job of it… He makes me sooo very happy. He has made me happier then I ever thought possible. I thought this kind of happiness only existed in fairy tales. We have alot of people who are envious of our relationship. Because we are so good for each other. With us both having the same disease and being so very understanding of each other. Our love and our relationship is just unheard of. I have not seen any relationship and love as strong as ours. I have to say that we are wonderful for each other. I could not ask for a more wonderful man, best friend and partner. He is my all and the reason Im alive. Thank you for everything my love… Thanks for living… thank you for a wonderful family. Thank you for loving me.

   I want to thank everyone who reads up on us… you fans do not know what you mean to us. Your the reason we have this website. I hope the writings inspire you the way they have me. That is how I met Sponge is through a red nose. That brought us together… and that website did a world of difference for me. Take care all of you… Take life one frame at a time.

Take care,

Lady Hawk

 The problem is that they put her in the middle, tearing her up emotionally and making her very ill.  Seems that the drama bullshit follows us no matter where we are.  Sunday night we were in a hotel in Mayfield, Kentucky enjoying time with our kids and Ally’s friend Tessa.  Then the phone calls and the drama bullshit started…happy family time became crappy time.

They have made their pain hers, thus mine.

So I have done as Jamie asked and spirited her somewhere she feels safe.  I could go back to our old home and stay, finish things up.

But that is not where I belong.  If she needs to be in Timbuktu, I will stay there.  If she needs me to “stand guard” over her 24/7 so that she feels safe, I will.  Why?  Because I love her.  She would do the same for me.  In fact, she has.  I cannot think of anywhere else I want to be.  Home is not a building, although we should be moving into our new home soon.  Home is the feeling of warmth and safety and love.  For Sponge Daddy, home is not the 1700 sq ft cottage we are getting.  Home is the 5′ 2″ lady who cares only for me and the kids.  Home is my daughter and my son.  Soon we will all be under one roof.  I would go anywhere for them.  They know that, and that security I give to them is something I never had.

For now, I am Jamie’s protector and confidante.  In another month it might be the other way around.  This is how it should be.

I am home.

 Be well,

 Sponge

ps, Sami, we miss you too.  We talk about you nearly every day.  Keep in touch!